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Childhood Leukemia
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Table of Contents

Introduction

  • Diagnosis 
  • Overview of Childhood Leukemia 
  • Acute Lymphoblastic Leukemia 
  • Acute Myeloid Leukemia
  • Juvenile Myelomonocytic Leukemia 
  • Chronic Myelogenous Leukemia
  • Telling Your Child and Others 
  • Choosing a Treatment 
  • Coping with Procedures 
  • Forming a Partnership with the Medical Team 
  • Hospitalization 
  • Venous Catheters
  • Chemotherapy and Other Medications 
  • Common Side Effects of Treatment
  • Radiation Therapy 
  • Stem Cell Transplantation
  • Siblings 
  • Family and Friends 
  • Communication and Behavior
  • School 
  • Sources of Support 
  • Nutrition
  • Insurance, Record-keeping, and Financial Assistance 
  • End of Treatment and Beyond
  • Relapse 
  • Death and Bereavement
  • Appendix A: Blood Tests and What They Mean Appendix B: Resource Organizations Appendix C: Books, Websites, and Support Groups Index

    About the Author

    Nancy Keene is the mother of a long-term survivor of high-risk acute lymphoblastic leukemia. A well-known writer and advocate for children with cancer, she has written and co-authored many books on topics ranging from childhood cancers to working with your doctor. Her work has appeared in publications such as Reader's Digest, Journal of the American Medical Association, Exceptional Parent, and Coping Magazine. Nancy has been interviewed on National Public Radio (NPR), frequently speaks to professional and parent groups, and has participated in online support groups for parents of children with cancer.

    Reviews


    "Insightful... Captivating... This book captures the array of experiences and advice from providers, parents, extended family, and most importantly, the patients. I encourage heathcare team members to read this valuable resource and consider sharing it with patients and families upon diagnosis." --Carol Roberts, BSN, RN, CCRC, Association of Pediatric Hematoloy/Oncology Nurses

    "A must-have resource for families of childhood leukemia patients and all library ­collections." --Julia Reffner, Library Journal Starred Review

    "This book offers rock-solid guidance to parents faced with the life-altering news that their child has leukemia. Keene offers guidance and comfort on their difficult journey. This work is highly recommended as a valuable addition to any library." --Claire B. Joseph, MS, MA, AHIP (D), Consumer and Patient Health Information section, Medical Library Association

    "Comprehensive, compassionate. It's organization and readability make it very accessible for parents and others touched by the frightening specter of childhood leukemia, and a must-have addition to any library or resource center collecting pediatric consumer health titles." --Nancy C. Seeger, Journal of Consumer Health on the Internet

    "Childhood Leukemia leaves no stone unturned when helping readers understand what to expect. Using an empathetic approach, it is written in clear, comprehensive language. I recommend that this book become a part of any library's consumer or health care collection." --Ansley Stuart, Allied Health Sciences Librarian

    "Childhood Leukemia is informative, realistic, and accurate. The author handles the topic with transparency, compassion, and a genuine desire to get factual and helpful information into the hands of those going through this disease with their child." --Cecilia C. Railey, Hospital Libraries section, Medical Library Association

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