Background: The Smell of Chlorine: Coming to Terms with Death
(Stuart J. Youngner and Robert M. Arnold)
Section I: Clinical and Legal Issues
1. Legal Issues in Death and Dying: How Rights and Autonomy Have
Shaped Clinical Practice (Alan Meisel)
2. "So what do you want us to do?" Patient's Rights, Unintended
Consequences, and the Surrogate's Role (Mark Aulisio)
3. Death at the Beginning: The Neonatal Intensive Care Unit (Renee
D. Boss)
4. Dying Children and the Kindness of Strangers (John D.
Lantos)
5. Medical Futility and Physician Power (Douglas White, Thaddeus
Pope)
6. Conscientious Objection (Mark R. Wicclair)
7. Continuous Sedation at the End of Life (Sigrid Stercks, Kasper
Raus)
8. Fluids and Nutrition (Daniel Salmasy)
9. Disorders of Consciousness and Neuro-Palliative Care: Towards an
Expanded Scope of Practice for the Field (Joseph Fins and Maria G.
Master)
10. Ethical Issues in Prognosis and Prognostication (Alexander K.
Smith, Paul Glare)
Section II: Theoretical, Cultural, and Psychosocial Issues
11. The Nature of Suffering (Eric J. Cassell)
12. On Our Difficulties Speaking To and About the Dying (David
Barnard)
13. The Cost of Dying among the Elderly in the United States:
Ethical Issues (Susannah Rose and Janelle Highland)
14. Death, Dying and the Disabled (Anita Silvers, Leslie
Francis)
15. The Effect of Social Media on End-of-Life Decision Making
(Jessica Berg)
16. Cultural Factors (Megan Crowley-Matoka)
17. Ethnicity as a Factor (Kimberly S. Johnson, Ramona L.
Rhodes)
18. Reframing Care in End-of-Life Care: Helpful Themes from a
Catholic-Christian Understanding of Death (Michael McCarthy, Mark
Kuczewski)
Section III: Physician-Assisted Death
19. Physician-Assisted Death in the Netherlands (Gerrit
Kimsma).
20. The Case Against Physician-Assisted Suicide and Euthanasia (Ira
Byock)
21. Goodbye Thomas: The Case for Physician-Assisted Dying (Margaret
P. Battin)
22. Depression and the Desire to Die Near the End of Life (Nathan
Fairman, Scott A. Irwin)
Section IV: The Emergence of Palliative Care and Hospice
23. Hospice and Palliative Care: Developments, Differences and
Challenges (David Clark)
24. Potential Perils to the Promise of Specialty Palliative Care
(Robert Arnold)
25. The Social Marketing of Palliative Care in Public Policy (Rolfe
Sean Morrison, Bridget Tracy)
26. Talking and Working with Dying Patients: True Grief and Loss
(Lisa Humphrey)
Stuart J. Youngner is the Susan E. Watson Professor of Bioethics
and Chair of the Department of Bioethics at Case Western Reserve
University School of Medicine. He has written and spoken
extensively about definitions of death, organ and tissue
transplantation, end-of-life decisions, and clinical ethics
consultation.
Robert M. Arnold, MD is Professor of Medicine, UPMC Montefiore
Hospital
"This book provides a varied and interesting compilation of
chapters combining the ethical and historical legal landmarks that
have shaped current policy and thinking on these issues. The
chapters are neatly bounded allowing the reader to dip in and out
according to their interests, while the span of topics is generally
comprehensive, covering ethics in end of life care right from
pre-natal through to gerontology. ... It is a worthy addition to
the field." --
Eleanor Wilson, Mortality
"This book helps address the need for an authoritative, advanced
survey on the ethical issues of end-of-life care, particularly as
technology continues to advance and palliative care becomes more
widely recognized. Because of the breadth and depth of topics, it
could serve as an up-to-date textbook on ethics at the end of life.
Seasoned scholars, students needing an introduction to the issues,
and clinicians seeking practical guidance all will find
something
useful to their work." -Doodys Health Science
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